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This lyme disease database provided as a public service of conscience and no monies or donations will be accepted.
Lyme disease could be the next great epidemic!!
Don't let the CDC convince you that is HARD to get an EASY to cure.
IT IS EASY TO GET AND HARD TO CURE!!
( It is only a tick bite away.Your beloved pet could pass it to you NOW and your family doctor would NOT be allowed to treat it without fear of losing his practice.Many GOOD doctors have already had charges brought against them in NY.
THE TRUTH YOU ARE ABOUT TO LEARN HERE WILL HORRIFY YOU!
CLICK THE BLUE TEXT BELOW to see REALPLAYER video of the Gordon conference
WAKE UP CALL. An introduction to the crisis at hand by Patrick Jarvis
Lyme disease patients tell their story
Myrna's experiences Pt2 N.Y. prosecutes Doctors for treating Lyme.
Additional testimony from credible witnesses
If you or someone you love were to get lyme disease ,You would NEED physicians like Dr.Burrascano and Dr Liegner
You would NOT want Steere's mandatory treatment!!
Why do you suppose doctors such as Dr Burrascano and Dr Liegner are loved by Lyme disease patients and you are not?
LOOK AT MYRNA'S HANDS in the realplayer video above to see what Steere's required treatment will do for you!
Prof. Doris Aaronson, Ph.D.
Departments of Psychology, Neural Science and Linguistics
New York University
It has come to my attention that one of the most nationally distinguished Lyme disease
doctors and researchers, Dr. Joseph Burrascano of Long Island, NY, needs the help of Lyme
patients, their family and friends. I have some comments on his situation based on my
experiences as a chronic Lyme patient, as one who is knowledgeable of the medical research
on Lyme, and as an NYU professor who has taught research methods and statistics to
graduate and undergraduate students for over 30 years, including those headed for careers
in medicine.
Dr. Burrascano is about to be prosecuted for medical misconduct by the NY State Office of
Professional Medical Conduct. OPMC has already investigated 17 other physicians who treat
Lyme patients. The statistical odds are that doctors prosecuted by OPMC for providing
long-term antibiotic treatment for chronic Lyme patients will have their medical licenses
revoked, suspended or restricted (to not treating Lyme patients); they will be fined, and
defense costs will run about $100,000.
The OPMC procedures are highly biased from the start. In a letter to a Lyme disease
patient in explaining the procedures used by the NY OPMC, Dr. Marks, Executive Secretary
of the OPMC wrote "Rarely, if ever, have the published guidelines indicated that
anything more that (sic) tow (sic) - three weeks of antibiotics are required to cure Lyme
disease." However, Dr. Marks' statement is contradicted by numerous research articles
in peer-reviewed biomedical journals, indicating (a) that many Lyme patients are not cured
by 2-3 weeks of antibiotics, (b) that some of those are cured after months or years of
antibiotic treatment, and (c) some are never cured. The National Institutes of Health is
currently funding research on category (b) and (c) patients. Biomedical research has
already documented some of the ways that Lyme bacteria can resist the effects of
antibiotics.
It appears from Dr. Marks' statement that OPMC has set up procedures which DEFINE medical
misconduct to target physicians who use long-term antibiotic therapy. This would obviously
deprive thousands of Lyme patients of experienced physicians like Dr. Burrascano. There
are two important causal factors in this attack on such physicians. (1) It appears that
many of these attacks are inspired by medical insurance companies which do not want to pay
for long-term antibiotic therapy, especially costly I.V. therapy. (2) Some of the Lyme
researchers who are involved in defining the standards for diagnosis and treatment of Lyme
used by the State and Federal Governments are ego-involved in the "theory"
stated by Dr. Marks, and further, they use flawed research procedures to support their
theory.
The flaw in much of their research is that they have very restrictive criteria for the
category of patients that can be used in their research. Then they inappropriately
generalize their research results to all Lyme patients including many who do not meet the
restrictive criteria. Every text book in either introductory statistics or research
methods warns that false conclusions can be made based on inappropriate generalization
from a research sample population to other populations with attributes that differ from
the research sample. These researchers use as participants only patients with recent,
short-duration Lyme disease for which short-term therapy generally works. They do not use
patients with long-term chronic Lyme, for which long-term and aggressive antibiotic
therapy is required. One can observe the flawed logic by reading some of the publications
of the Lyme researchers who support Dr. Marks' theory, and by discussions with
knowledgeable physicians who are familiar with the Lyme research.
In my own case, I had a wide variety of clinical symptoms of Lyme for well over 15 years,
and had misdiagnoses on 22 occasions by doctors who regularly under-diagnose Lyme. After I
diagnosed myself, had that diagnosis verified by 6 consecutive positive blood tests taken
by a NJ doctor who regularly underdiagnoses and undertreats Lyme, and was treated by
inappropriate and ineffective oral antibiotics, I decided to seek another doctor. I was
referred to a team of distinguished NY doctors involved in the group represented by Dr.
Marks' views. But they refused to take me as a patient BECAUSE I did not meet any of their
research criteria of (a) having a known tick bite, (b) within 2 months or less of starting
antibiotic treatment, and (c) experiencing a "bull's-eye" rash. Separate from
their research, those doctors would not provide clinical treatment in cases where
short-term therapy might not work.
Fortunately, I found a doctor who had read Dr. Burrascano's research and followed his
treatment philosophy. After a few more tests to eliminate alternative diagnoses, I was put
on close to 2 months of daily double-doses of I.V. antibiotics, followed by years of oral
antibiotics. The result is that I can continue to teach and do research. Without
aggressive long-term antibiotic therapy, which would likely be defined as medical
misconduct by people with Dr. Marks' views, I would have cost an insurance company, my
employer and/or the government a substantial amount of money for permanent medical
disability benefits, as opposed to only 9 months of disability.
If Dr. Burrascano is convicted and punished by NY OPMC, not only will his patients suffer,
but thousands of others, like myself, whose doctors learn from Burrascano's publications,
will suffer. A "political witch hunt" is going on in NY State, and it threatens
many ethical and experienced doctors who treat long-term Lyme patients. I encourage you to
help present and future Lyme patients by helping to defend Dr. Burrascano. As soon as
possible (as his trial by OPMC is approaching), send your comments in support of Dr.
Burrascano, and his views of giving long-term antibiotic therapy to patients who don't
respond to the 2-3 week version, to Gov. Pataki's email address:
gov.pataki@chamber.state.ny.us
Other NY email addresses to cc your same email are the following:
NYHealth@health.state.ny.us
NYSAG@org.state.ny.us
Bruno@senate.state.ny.us
speaker@assembly.state.ny.us
hannon@senate.state.ny.us
gottfrr@assembly.state.ny.us
senator@dpm.senate.gov
senator@schumer.senate.gov
jerroldnadler@mail.house.gov
dollinge@senate.state.ny.us
In addition to your emails to the relevant governmental people, you might want to consider
joining the Foundation for the Advancement of Innovative Medicine (FAIM), which is
supporting Dr. Burrascano's defense. FAIM's $35 dues provides a quarterly health-relevant
newsletter.
CONTACTS:
Barbara Barsocchini
Malibu, CA
310-456-3625 afternoons
LymeBarb@aol.com
Jonna Duff
Oxnard, CA
805-984-3248
midnight@vcnet.com
Art Doherty
Lompoc, CA
805-733-5253 (usually busy/on internet)
doherty@utech.net
CALIFORNIA LYME DISEASE PATIENTS MEET IN VENTURA ON JANUARY 19th TO DEMONSTRATE AGAINST
SPEAKER AT CONFERENCE ON BACTERIA.
A meeting of Southern California Lyme patients and their friends will take place at the Holiday Inn, Ventura, California, on Wednesday, January 19, from 9 a.m. to 1 p.m. The patient support meeting, in the California Room on the first floor, will coincide with the Gordon Research Conference on Biology of the Spirochetes at the same location.
Allen Steere is scheduled to speak at 9 a.m. on the 19th, as part of the Gordon Conference - Steere's subject: "Autoimmune aspects of Lyme disease". Allen Steere, MD, who has been credited with "discovering" Lyme disease a quarter century ago, is a pivotal figure in Lyme disease research, known for promulgating a conservative ideology on the diagnosis and treatment of Lyme disease. Steere has given testimony against physicians who do not follow his stringent guidelines. His mantra is Lyme disease is "overdiagnosed and overtreated". Patients are turned away, denigrated publicly, denied adequate treatment and insurance coverage, and generally stigmatized as a result of these predominant beliefs; and their doctors have lost their licenses and medical practices.
Lyme disease, a tick-borne bacterial infection, is the second fastest growing infectious diseases in the US. With over 16,000 cases reported in 1998, the actual figure easily may be much more according to the CDC. Although publicized chiefly on the East coast, Lyme disease occurs nationwide, as well as, worldwide. There are many high risk areas for Lyme disease in California including northern, central, and southern California.
"Steere's "overdiagnosis and overtreatment" school of thought promotes
narrow, ethically suspect viewpoints and medical guidelines which, more and more, ignore a
growing body of scientific evidence and patient tragedy." - Marleen Oetzel, patient
advocate.
[end of press release]
The Gordon Conference:
Spirochete Conference Program, January 16-21, 2000, Ventura Holiday Inn http://dpalm.med.uth.tmc.edu/faculty/bios/norris/program2000.html
Holiday Inn
450 E. Harbor Blvd.
VENTURA, CA 93001
Phone: 800-842-0800
Directions to Ventura Holiday Inn
http://www.isle.net/~holiday/map.htm
Prior recent protest against Dr Steere:
Lyme patients protest the NIH honoring of Allen Steere, MD as "Astute
Clinician"
http://x-l.net/Lyme/conf/10.99.steere.protest.nih.html
Allen Steere testifies against Michigan physician:
State of Michigan in the Circuit Court for the County of Saginaw, Joseph Natole, Jr.,
M.D., Petitioner
http://lymealliance.org/Legal/Appeal/appeal.html
Centers for Disease Control and Prevention on the underreporting of Lyme disease:
CDC: Lyme Disease: "the disease is greatly underreported"
http://www.cdc.gov/ncidod/dvbid/lyme_QA.htm
CDC: Lyme Disease: "there is considerable underreporting"
http://www.cdc.gov/ncidod/dvbid/lymeepi.htm
CDC: "Two studies have shown that cases have been underreported ..."
http://www.cdc.gov/ncidod/EID/vol5no3/meltzer.htm
Lyme disease in California:
Lyme disease in California:
http://www.geocities.com/HotSprings/Spa/6772/california-index.html
U.S. Army Lyme Disease Risk Assessments in California:
Camp Pendleton, San Diego, CA - 1992
http://www.utech.net/users/10766/003.txt
Vandenberg Air Force Base, Lompoc, CA - 1995
http://www.utech.net/users/10766/005.txt
Other contacts:
Rita L. Stanley, Ph.D.
Portland, Oregon
ritastan@worldnet.att.net
Marleen Oetzel
Marleenoet@aol.com
Lyme Disease Foundation
Hartford, Connecticut
860-525-2000
lymefnd@aol.com
http://dwp.bigplanet.com/eojlyme/pages/view/index.nhtml
The following three web pages present scientific and medical information extracted from
the National Library of Medicine MEDLINE citations supporting the viewpoints and treatment
methods of Lyme disease knowledgeable physicians and the viewpoints of uncured but
knowledgeable Lyme disease patients:
Persistence or Relapse of Lyme Disease - An Annotated Bibliography http://www.geocities.com/HotSprings/Oasis/6455/persistence-special.html
Long-Term or Repeated Antibiotic Therapy for Lyme Disease - An Annotated Bibliography http://www.geocities.com/HotSprings/Oasis/6455/therapy-special.html
Seronegative or False Negative Lyme disease - An Annotated Bibliography http://www.geocities.com/HotSprings/Oasis/6455/seronegative-special.html
Recent news articles on the Lyme disease controversy:
Patients to protest talk by Lyme disease discoverer, Boston Herald, 3 Nov 99 http://www.bostonherald.com/bostonherald/health/lyme11031999.htm
New Haven Advocate: Lyme Et Veritas, July 1999
http://www.newhavenadvocate.com/articles/lymedisease.html
The Dirty Truth Behind Lyme Disease Research, Fairfield Co. Weekly, 20 May 1999 http://www.fairfieldweekly.com/articles/lymedisease.html
For more information about Lyme disease, see:
Lyme Disease by Dr Joseph Burrascano, Conn's Current Therapy, 1997 (7 pages) http://www.geocities.com/HotSprings/Spa/6772/conns.txt
Lots Of Links On Lyme Disease (over 5,800 categorized links)
http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html
Press release: California Lyme disease patients plan meeting and demonstration in Ventura http://www.geocities.com/HotSprings/Oasis/6455/gordon-press-release.html
Last updated on 12 January 2000 by
Art Doherty
Lompoc, California
doherty@utech.net
The Santa Cruz County
Tick-Borne Illness Support Group Page
Contact Info:
Sarah Weiss, Aptos, Santa Cruz County, California
AramSarah@cs.com
1-831-662-3628
The ALS/Lyme Page
The Tick-Borne Illness
Memorial Page